Friday, May 29, 2009

Getting the scan results

Colin and I were on pins and needles the first week. Not knowing whether this was the beginning or a metastasis was extremely stressful. The appointment was at 11:45.

The Doctor took care of all the other appointments ahead of us so that he could have plenty of time to discuss things with us. We got the great news that this was the only discernible site, at least as a mass, at this time. (No scan can find individual cells that are moving.) So we discussed the surgery.

There is no evidence that a sentinel node biopsy is warranted for angiosarcoma, but by this time, I had read of several cases where it was found in the lymph nodes. We discussed what the lymph biopsy involved, and all agreed that it was prudent to proceed with the procedure. The surgery was scheduled for June 9th, the day after our Dana-Farber consult. After all of our reading, we were confident that the Dana-Farber folks would agree the mastectomy was necessary. Since I had become comfortable with the Lahey-Northshore surgery center (ganglion cyst/carpal tunnel in 2007, lumpectomy), we were not anxious to start over in a new place with a new surgeon, nor have a longer wait for the procedure.

We left the office in a state of relief. We called our folks, and then stopped at work to discuss the course of action with the nurses, and what documentation was required for medical leave. After that, we stopped at my group to report on the clear scans. Later several of my colleagues reported that they all let out a collective sigh of relief on hearing the news. That was true with everyone with whom we had discussed this.

Ruth Ann with edits by Colin